GMT20260430-204001_Recording_640x360

51:25 8 Hátalar 27 Kaflar 1236 hlutar

Fullt afritunarforrit Leita í öllu

Hátalar

Kaflar

0:00

Kafli 1: Okay, great. 147s · Speaker 3

Okay, great. So let me just start with a basic question about kind of how you guys would describe your overall experience with the Grassroots Advocacy Academy. So that includes things like the town halls, the team huddles, the live and virt…
2:27

Kafli 2: Okay. So we need to really build on getting more committee members. 103s · Speaker 2

Okay. So we need to really build on getting more committee members. We're lucky if one person or two people show up. And actually, I think that's why I got the job was because I was the only one that showed up every time. That happens. That…
4:11

Kafli 3: I feel like the. 60s · Speaker 3

I feel like the... Overall, I thought it was well done. But the module, I kept getting an email saying you haven't completed your work. And the module I hadn't done was the one on if you take someone to lunch, like what counts for something…
5:11

Kafli 4: very helpful. 83s · Speaker 1

very helpful. Thanks, Terry. Any other comments? And again, you don't have to comment on every question, but before I move forward. I thought the module was a good refresher course, but I've been doing this with other groups as well, and th…
6:35

Kafli 5: I would like to get more training. 66s · Speaker 2

I would like to get more training. in the goals what Cancer United has at any particular time. I mean, what is it we're going to be asking for? And get that far enough in advance of when we're going to be doing the asking that I have time t…
7:42

Kafli 6: Yeah, things are coming late. 77s · Speaker 5

Yeah, things are coming late. I'm just now taking on chair of our Texas Advocacy Committee, so I'm trying to get things out more in advance, but I can only get out what is given to me. Yeah, that's a great observation. Yeah, I do think we n…
9:00

Kafli 7: right they talk about our strongest Our stories are the strong message that gets the point across. 67s · Speaker 4

right they talk about our strongest Our stories are the strong message that gets the point across. So if we have a little more time to craft our message, our story, so in terms of research, how can I fold that into my story? It's kind of ha…
10:08

Kafli 8: I think. So starting even in January, if people were laying out, here's what the strategy is and here's where we're going. 117s · Speaker 7

I think. So starting even in January, if people were laying out, here's what the strategy is and here's where we're going. That's one of the things that could help all of you is what I'm hearing. Is that a fair playback? The talking points,…
12:05

Kafli 9: Kind of along the lines with that, is there a way, like when Danielle says something or sends something that I could put on a Facebook thing that's not quite as detailed as what we get because we're a little more. 81s · Speaker 5

Kind of along the lines with that, is there a way, like when Danielle says something or sends something that I could put on a Facebook thing that's not quite as detailed as what we get because we're a little more... You kind of understand i…
13:27

Kafli 10: You know, I feel like we need more than just people that are directly impacted by blood cancer by themselves or somebody in their family or close friend, but are just also going to be impacted by funding cuts, changes to Medicaid, things like that. 92s · Speaker 1

You know, I feel like we need more than just people that are directly impacted by blood cancer by themselves or somebody in their family or close friend, but are just also going to be impacted by funding cuts, changes to Medicaid, things li…
15:00

Kafli 11: and said oh that really really helped me i think the day before lobby day when we all get together and we hear from you know not only staff but other professionals that to me has been the most valuable tool that i've i've been given by blood cancer united i find the modules um i think diana was saying they're pretty elementary i mean if you've been doing this for a long time You know, you already know the basics and have to redo them every year is a little frustrating. 275s · Speaker 4

and said oh that really really helped me i think the day before lobby day when we all get together and we hear from you know not only staff but other professionals that to me has been the most valuable tool that i've i've been given by bloo…
19:35

Kafli 12: I just did an interview segment and that really helped to see how everybody talks, you know, how they talk to other people, how they respond. 235s · Speaker 5

I just did an interview segment and that really helped to see how everybody talks, you know, how they talk to other people, how they respond. Some people are more professional, some are more lighthearted. And it was nice to see the way diff…
23:33

Kafli 13: Hi, can you see me? 91s · Speaker 3

Hi, can you see me? We can. All right. Great. Thank you. I so apologize. I had my cousin passed away from lung cancer today. Oh, yeah. And so it's just been a heck of a day. And so I'm jumping on late. So I'm Richard Armstrong. I'm from Phi…
25:04

Kafli 14: think the materials are excellent i mean sometimes i would like more in -depth information but i know that i can reach out to someone and get that information or research on my own if i if i want to yeah others oh richard you get your hand up go ahead Yes, so thank you. 64s · Speaker 7

think the materials are excellent i mean sometimes i would like more in -depth information but i know that i can reach out to someone and get that information or research on my own if i if i want to yeah others oh richard you get your hand …
26:08

Kafli 15: I appreciate that they give a lot of the background and more details and then distill it down to the five or six talking points. 86s · Speaker 2

I appreciate that they give a lot of the background and more details and then distill it down to the five or six talking points. So, you know, there is the more in -depth information and resources, like Linda says, if you want to go and get…
27:35

Kafli 16: This is Diana. 63s · Speaker 4

This is Diana. This might be a little too specific, but we're always talking about how Nebraska is lagging behind. And I don't know what we're lagging behind in all the time. They'll say that Iowa passed such and such and Arizona did this a…
28:39

Kafli 17: So basically you need, like, it's almost hard for you to go in and have the meeting if you don't know what you're talking about as far as if you're further behind. 90s · Speaker 6

So basically you need, like, it's almost hard for you to go in and have the meeting if you don't know what you're talking about as far as if you're further behind. Okay. Yeah, they'll give us the Nebraska specifics. But if I'm going to try …
30:10

Kafli 18: I mean, I'm going to put my two cents in. 300s · Speaker 2

I mean, I'm going to put my two cents in. I also, not that I haven't already, but I would really like to know more about the medical advances that are being made. You know, we'll hear about, oh, this cancer, this is happening and it will be…
35:10

Kafli 19: Bimonthly, okay. 113s · Speaker 1

Bimonthly, okay. And have you found that, again, the in -person is better than, like... We don't have... Well, you know, it's the entire thing. Not in person, I'm saying, but maybe Zoom. It's like, well, that's what I'm considering. Yeah, w…
37:04

Kafli 20: This is Diana. 209s · Speaker 2

This is Diana. I kind of like the strategy aspect as in like why we're targeting certain, whether it's on the state level or the federal level. So I'm going to federal lobby day. It will be my first. And I asked, just flat out asked. my Blo…
40:35

Kafli 21: Yeah, I'm hearing exactly what you're saying. 95s · Speaker 4

Yeah, I'm hearing exactly what you're saying. And I think I'm hearing a couple strands. One is you want to be part of the strategy and working collaboratively with them. And they are working collaboratively with you, but there's more you ca…
42:13

Kafli 22: right bring a sweater diana bring a sweater because it is so cold in those conference rooms thank you see that helps cardio but then you don't know like on the day you're walking definitely comfortable walking shoes because you're walking all over the place in congress and throw a umbrella in your bag because it was raining last year okay and i figured we're wearing red like do i need to get out my red dress see that absolutely absolutely yeah we women need to know what to wear exactly and we did not get i remember the first year i went and you know everybody was wearing red and i was there in blue and i thought oh dear you know right i didn't have anything red at the time i since purchased red but Yeah, no, these are fantastic points. 181s · Speaker 3

right bring a sweater diana bring a sweater because it is so cold in those conference rooms thank you see that helps cardio but then you don't know like on the day you're walking definitely comfortable walking shoes because you're walking a…
45:14

Kafli 23: Some of the training should take place. 66s · Speaker 7

Some of the training should take place. You know, a lot of people become come to advocacy from a board position, you know, like they're on the like I was on the Gulf Coast board. So some. And there needs to be more emphasis on advocacy at t…
46:20

Kafli 24: Yeah, I often use the phrase, we need more advocates for advocacy. 68s · Speaker 5

Yeah, I often use the phrase, we need more advocates for advocacy. Yeah. I mean, when I worked at the Cancer Society, it was always a struggle, to your point, because fundraising was always so important, which it should be. But to get some …
47:29

Kafli 25: Yep. You know, I'm, I stay informed and then I, you know, spend some time, not a lot, but a little bit of time at the board meeting saying, this is what's going on. 81s · Speaker 4

Yep. You know, I'm, I stay informed and then I, you know, spend some time, not a lot, but a little bit of time at the board meeting saying, this is what's going on. you know federally and and it's interesting because I was talking about sta…
48:50

Kafli 26: Again, I want to be super respectful of your time. 84s · Speaker 5

Again, I want to be super respectful of your time. Joel? Dan, what I would like, and I don't know if this is possible, but I live about two hours away from Dallas, and I know that my oncologist tells me that he has lots of blood cancer pati…
50:15

Kafli 27: you could go out and, you know. 67s · Speaker 2

you could go out and, you know. You could go out and get those folks and recruit them. I think this person to person recruitment is really important, but they've got to make it easy for you to do it. Yeah. All right. It is 530. Is there any…